My Story With Crohn’s Disease

“I have Crohn’s Disease.” “Okay what’s that?”

“I have Crohn’s Disease.” “That similar to (insert a number of things) isn’t it?”

“I have Crohn’s Disease.” “Are you on a special diet for that?”

The above is some of the most common responses I get when I tell people I have Crohn’s. Just so everyone is aware Crohn’s is a autoimmune disease that effects someones digestive track more specifically the bowels. It not the most pleasant subject to talk about.

I was 12 years old when I got diagnosed with Crohn’s I will admit I don’t remember a lot of the year I was sick. It took 3 doctors and just over a year before they confirmed the diagnoses of Crohn’s. I was off school for quite some time and had a lot of doctors appointments and medical tests done in that year.

Crohn’s isn’t curable, hell they don’t really know what cause it, they can have an educated guess but that’s it. It is manageable with medications but the medications that they put you on to manage it have there own side effects. I am relativity lucky that I don’t have reactions to medications to often.

I am not going to get into the symptoms simply for fact they aren’t the nicest of subjects and if your interested look up Crohn’s disease and it comes up with all the medical terms. On this particular blog I’d like to keep it less medical and more just my experience and how it has effected me.

I think the most impact it has had is how it has effected my mental health. I was 12 when I first got diagnosed and 11 when I became sick not many kids that age understand that you have a life long illness, I know I didn’t. Something that was also a problem was when I was really sick I lost a lot of weight when they finally figured out what was wrong they put me on medication that made me gain weight. I was 12 at the time I was just starting to discover my self image and losing a lot weight and then gaining it all back again without me changing my lifestyle really fuck with my head. I wasn’t sure how I was supposed to look and was just really confused. By the time I was 13 years old I had decide that I wanted to look the way I was when I was sick and this time it wasn’t so easy to the lose the weight I was healthy again. It has made my relationship with food very complicated and my body image is very fucked up because of it.

It’s sad to say but 20 years old the hospital is like my second home because I am there so often, especially with the mental health issue now I am there even more often.

Anyway that’s kinda my story for crohn’s, I will be back with another post soon 🙂

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